PATIENT STORIES & PERSONAL WEBSITES

If you have a story or a website that you would like to share, please email me & let me know!  It is helpful to others to be able to read the stories of people with HH. 

• A Patient's Story Tim Casey: Living with Hemochromatosis  American Liver Foundation Progress Newsletter-Special Double Issue Vol. 17, No. 2/Fall 1995-Winter 1996 

• Hemochromatosis Special  American Liver Foundation newsletter,  ALF Progress, Vol. 21 No. 1, Summer 1999 The ALF newsletter created three scenarios based on the real life ethical, economic and medical quandaries posed by hemochromatosis, and asked three experts from divergent fields to respond with their opinions. The experts are: Bruce R. Bacon, MD [Director, Div. of Gastroenterology & Hepatology, Saint Louis University School of Medicine, St. Louis, M0]; medical ethicist Mark A. Rothstein, Esq. [Director, University of Houston Law Center, Health Law & Policy Institute, Houston, TX] and hemachromatosis patient Gayle Hoffman.

• Iron Overload Causes Fatal Symptoms OFTEN UNDIAGNOSED GENETIC DISORDER CAN BE TREATED  BY ANNE WILSON THE SALT LAKE TRIBUNE Thursday, October 10, 1996  The sad stories of 2 families who suffered a loss from a late diagnosis of HH.

•  IRON WOMAN    For 8 years, Shiryl Foster was wracked with a disease that can be easily detected.  By Gary Evans, Editor. This article was printed in the The Thomasville Times Newspaper on page 1A on October 24, 1996 in Thomasville, NC.  (Shiryl Foster, RN is the same patient who was profiled in the PREVENTION MAGAZINE article in 1997)

• Irritable Bowel Syndrome & The Iron Connection
  This booklet written by Dr. Leslie Johnston, mentions a connection between excess iron & IBS, Chronic Fatigue Syndrome [CFS], Fibromyalgia [FM] & many other symptoms and/or diagnoses.

• Piecing together our future: The new map of the human genome will change our lives forever Sunday, June 25, 2000 By Byron Spice, Science Editor, Post-Gazette Reading the book of life A four part series: How genetics will transform medicine.  Story includes Keith Stewart & Dr. Block

• Texas Dazzler's homepage 
  Read the story of Michelle, who has suffered from a late diagnosis of HH, resulting in liver damage & being placed on a liver transplant list.

• "They'd rather not know" Some members of a family susceptible to a treatable blood-iron disorder reject testing.  Sunday, June 25, 2000 By Byron Spice, Science Editor, Post-Gazette

• Warding off illness  The Tucson Citizen, January 27, 1998  Ronald Fair has learned to live with the side effects of a blood disorder that was once underdiagnosed. By PATTY MACHELOR citizen Staff writer

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